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TAKE ACTION Contact your Representative - IVIG Demonstration Project Bill Introduced!
After two days of presentations and discussion as to whether the current FDA blood donor policy should be changed, the Department of Health and Human Services’ Advisory Committee on Blood Safety and Availability (ACBSA) voted to retain the current policy.Read More
It was just over a month ago when Congresswoman Doris Matsu (D-CA) and 7 original co-sponsors introduced HR 5597, the Medicare Patient IVIG Access Demonstration Project. Because of the efforts of IDF volunteers and members of the PIDD community, there are now 22 co-sponsors with more on the way. What has been fascinating over the [...] Read More
Health Care Reform Law Provisions & Implementation
IDF will periodically post status reports, links to other websites, and explanations of various provisions of the new health care reform law as well as implementation reports.
Medicare Patient IVIG Access Act
Many members of the primary immunodeficiency community experience delays in and denial of treatment due to insufficient Medicare reimbursement.
SCID Newborn Screening
Get the facts about the SCID Newborn Screening Campaign with the Newborn Screening toolkit to become a successful advocate.
Minnesota Standards of Care
Legislation has been introduced that would require the Minnesota State Board of Pharmacy to develop rules governing the standards of pharmaceutical services for individuals needing plasma protein therapies.
Health Insurance - Ig Guidelines
IDF is working to ensure that health insurers fulfill their obligation to cover treatment of primary immunodeficiency diseases.
June 11, 2010 - Read More
June 10, 2010 - Read More
May 25, 2010 - Read More
March 31, 2010 - Read More
March 30, 2010 - Read More
Immune Deficiency Foundation 40 West Chesapeake Avenue,
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1-800-296-4433 idf@primaryimmune.org
