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Also Available in Spanish and French

A Spanish version of the Patient and Family Handbook, 3rd Edition is available:
Manual Del Paciente Y La Familia (en español)

A French version of the Patient and Family Handbook, 3rd Edition is available:
Manuel de l'IDF Destiné au Patient et à sa Famille (en français)

IDF Patient & Family Handbook

For Primary Immunodeficiency Diseases, 4th Edition

IDF Patient and Family Handbook  

This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team. Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient's condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.

Patient Family Handbook – (download the complete book)

 
    Table of Contents
 

Editors and Contributors & Preface

Chapter 1

 

The Immune System and Primary Immunodeficiency Diseases

Chapter 2

 

Common Variable Immune Deficiency

Chapter 3

 

X-Linked Agammaglobulinemia

Chapter 4

 

Selective IgA Deficiency

Chapter 5

 

Severe Combined Immune Deficiency

Chapter 6

 

Chronic Granulomatous Disease

Chapter 7

 

Wiskott-Aldrich Syndrome

Chapter 8

 

Hyper IgM Syndrome

Chapter 9

 

DiGeorge Syndrome

Chapter 10

 

IgG Subclass Deficiency and Specific Antibody Deficiency

Chapter 11

 

Ataxia Telangiectasia

Chapter 12

 

Hyper IgE Syndrome

Chapter 13

 

Complement Deficiencies

Chapter 14

 

Other Important Primary Immunodeficiency Diseases

Chapter 15

 

Inheritance

Chapter 16

 

Laboratory Tests

Chapter 17

 

General Care

Chapter 18

 

Specific Medical Therapy

Chapter 19

 

Infants and Children with Primary Immunodeficiency Diseases

Chapter 20

 

Adolescents with Primary Immunodeficiency Diseases

Chapter 21

 

Adults with Primary Immunodeficiency Diseases

Chapter 22

 

Health Insurance

   

Glossary

   

Resources

     

FOURTH EDITION
COPYRIGHT 1987, 1993, 2001, 2007 IMMUNE DEFICIENCY FOUNDATION
Copyright 2007 by Immune Deficiency Foundation, USA.

Readers may redistribute this article to other individuals for non-commercial use, provided that the text, html codes, and this notice remain intact and unaltered in any way. The Patient & Family Handbook may not be resold, reprinted or redistributed for compensation of any kind without prior written permission from Immune Deficiency Foundation. If you have any questions about permission, please contact: Immune Deficiency Foundation, 40 West Chesapeake Avenue, Suite 308, Towson, MD 21204, USA; or by telephone at 1-800-296-4433, or by e-mail idf@primaryimmune.org.

Usage of this site constitutes your understanding and acceptance of the IDF Disclaimer.

This publication has been made possible through a generous grant from Baxter Healthcare Corporation.

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