IDF Surveys

• Patient Surveys
• (1995) Primary Immune Deficiency Disease in America: The first national survey of patients and specialists
• (2002) Primary Immune Deficiency Disease in America: The second national survey of patients
• (2003) Treatment Experiences and Preferences of Patients with Primary Immune Deficiency Diseases: First national survey
• (2007) Primary Immunodeficiency Diseases In America: The Third National Survey of Patients
• (2008) Treatment Experiences and Preferences Among Patients with Primary Immunodeficiency Diseases
• IVIG Access Surveys
• (2006) Assessing the Impact of Changes in Reimbursement Regulations and Product Availability on Access to Intravenous Gammaglobulin Treatment Among Primary Immune Deficiency Patients
• (2006) The Immune Deficiency Foundation and American Academy of Allergy, Asthma and Immunology Immunologist Survey Regarding IVIG Treatment
• (2006) Hospital Usage of Intravenous Immunoglobulin: A 2006 survey of pharmacy directors
• Published Reports
• Population Prevalence of Diagnosed Primary Immunodeficiency Diseases in the United States
• Impact of intravenous immunoglobulin (IVIG) treatment among patients with Primary Immunodeficiency diseases
• Use of Intravenous Immunoglobulin and Adjunctive Therapies in the Treatment of Primary Immunodeficiencies

If you would like more information, please call IDF's Director of Survey Research at 800.296.4433 or idf@primaryimmune.org.