The Immune Deficiency Foundation (IDF) treatment surveys are based on persons known to IDF as individuals who use immunoglobulin replacement therapy in the treatment of their primary immunodeficiency. While these IDF treatment surveys are not probability samples from which we can make population estimates within known limits of sampling error, they provide the most representative samples currently available of patients with a rare disease from which we can examine treatment experiences.
All of the following materials are available for download and completely free. Take a look, read through the materials and share the links with your friends, family and healthcare providers.
2013 IDF National Immunoglobulin (Ig) Treatment Survey Links:
- 2013 IDF National Immunoglobulin Treatment Survey Report
- 2013 IDF Treatment Survey SF-12 Quality of Life Overall Scores
- 2013 IDF Treatment Survey Slide Deck
- 2013 IDF National Treatment Survey Questionnaire
- Health-Related Quality of Life in Adult Patients with Common Variable Immunodeficiency Disorders and Impact of Treatment (Published in Journal of Clinical Immunology, May 2017)