IDF advocates for policies which allow patients ready access to safe and quality care, in the site of care that is most appropriate, with the treatment best recommended by providers with a minimization of cost to the patient.
With all 50 states now screening for Severe Combined Immunodeficiency (SCID), IDF advocates for policies that ensure universal screening is maintained nationwide, support emerging opportunities to screen for other types of (PI), and work to remove barriers to the use and development of accurate diagnostic tools.
IDF advocates for policies that ensure the voice of individuals living with PI is represented in health policy debates. We work to ensure Congress understands the importance of universal vaccinations and of addressing the overuse of antibiotics to the PI community.
IDF advocates for increased funding for research supporting the PI community and removal of barriers to the development and availability of new and emerging therapies to treat PI.