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Grassroots advocacy is the expression of popular support (or opposition) for a position that demonstrates the depth of constituent support and gives legislators an added degree of confidence in their position. You don't need to be a professional lobbyist to influence how policy and legislation are created. Grassroots advocacy helps to personalize an issue. The primary immunodeficiency (PI) community has unique needs that most legislators are not familiar with. All you need is personal experience, factual information to back up your personal experience, knowledge of who the key decision-makers and what is most likely to influence them. IDF can provide the factual and political information necessary for a successful advocacy campaign. But really, it all starts with you.

The IDF Grassroots Advocacy Toolkit

You can become a standard of excellence for grassroots advocacy. With a basic understanding of the "Do's and Don'ts" of letter writing and telephoning legislators; writing letters to newspapers or engaging talk radio; and a strong understanding of the issues; you can be part of an unbeatable team that can help ensure that patients with PI receive the quality of care that they deserve.

Keeping IDF Informed of all Grassroots Activity

For a grassroots advocacy campaign to work to its full potential, we must all be on the same page. Please take heed of the following reminders:

  • Please forward or copy IDF on all e-mail correspondence with legislative offices using
  • The same should be taken in consideration with mailed letters, please send us a copy or scan and e-mail us a copy of all correspondence that occurs.