Many adults with primary immunodeficiency (PI) live full lives. The well-informed patient can often pursue a career and live an active, productive life. We are here to help you.
Adults Living with PI
Read helpful advice for adults living with PI, including understanding your diagnosis, normalizing your life and coordinating your healthcare. This information is taken from our IDF Patient & Family Handbook.
Patients often have many questions about managing their PI, from locating a specialist to understanding insurance coverage. When you have a question, we encourage you to submit the Ask IDF form or call 800-296-4433.
IDF’s Peer Support connects people and patients who share similar relationships to PI. Adults living with PI can be connected to other adults. Click here for more information.
In addition to educational materials and information, we offer patient education programs on the local and national level to help patients and families manage PI:
- Get Connected Groups
- Local Patient Meetings
- IDF Retreats
- IDF National Conference
- IDF Youth Programs
- IDF Teen Escape
To see all upcoming meetings and events, click here for the IDF Calendar of Events.