For people with PI, dealing with health insurance and understanding the maze of issues involved can be overwhelming. Often health insurers require additional paperwork to justify the use of the therapy prescribed. Added red tape and follow up phone calls can be frustrating. Even individuals who have adequate insurance coverage often face expensive insurance premiums or high co-payments or coinsurance.
If you are confused about insurance options, or simply lacking affordable health insurance start here to learn the basics and frequently used terms.
Many older people need help paying for prescription drugs, healthcare, utilities and other basic needs. Ironically, millions of older Americans—especially those with limited incomes—are eligible for but not receiving benefits from existing federal, state and local programs. Ranging from heating and energy assistance to prescription savings programs to income supplements, there are many public programs available to seniors in need if they only knew about them and how to apply for them.
The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease or the frailties of old age.
The Children’s Defense Fund is a non-profit organization devoted to children’s issues, including the Children’s Health Insurance Program.
Families USA is a non-profit organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans. The website contains state and national resources.
Family Voices is a national organization that provides information and education concerning the healthcare of children with special health needs.
A resource for families, individuals and the self-employed, the Health Insurance Resource Center provides the tools to become a better-informed health insurance consumer.
This site provides links to state child and adolescent health insurance programs.
The Invisible Disabilities Association (IDA) helps those living with various conditions, as well as their loved ones, through their website, articles, literature, projects and seminars.
Keep Swimming Foundation provides relief to families of critically ill patients who require extended inpatient medical care at an accredited hospital through micro grants ranging from $100 to $1,500.
Provides children and their families free flights to distant, specialized care and second opinions.
BPL manufactures Gammaplex.
IgIQ Resource Hotline: 877-355-IgIQ (877-355-4447)
CSL Behring manufactures Hizentra and Privigen.
Grifols Customer Support Center: 888.GRIFOLS (888-474-3657)
Gamunex Connexions Program (comprehensive support program): 888-694-2686
Xembify Connections (copay assistance and patient assistance program): https://www.xembify.com/en/xembify-connexions
Grifols manufactures Flebogamma DIF, Gamunex-C, and Xembify.
- Grifols Copay Assistance Announcement 10-27-20: XEMBIFY now offers copay assistance up to $10,000 per calendar year for eligible patients (subject to terms and conditions). Click here to read more.
Kedrion manufactures Gammaked.
Product Information: 866-634-2765
Coverage Assistance and Patient Access Program: 877-534-9627
Leadiant Biosciences manufactures Revcovi.
Octapharma Support Center: 800-554-4440
Octapharma manufactures Cutaquig and Octagam.
Takeda manufactures Cuvitru, Gammagard Liquid, Gammagard S/D, and HyQvia.