Recently, the IDF 2017 National Patient Survey was mailed to select households. If you received the survey, please consider offering us a few moments of your time by completing it today. The purpose of this survey is to learn more about how primary immunodeficiency diseases (PI) affect individuals’ lives. Co-developed with immunologists, the IDF 2017 National Patient Survey specifically focuses on PI diagnosis, family history of PI, access to care, treatment and overall well-being.
We encourage you to share your experiences with IDF! Your participation will provide information that is vital to continuing the mission of IDF—to improve the diagnosis, treatment and quality of life of people with PI.
If you have any questions, please contact IDF: 800-296-4433 or firstname.lastname@example.org.
This post originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe.