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IDF Started with You

April 16, 2018

The Immune Deficiency Foundation (IDF) started with volunteers. In 1980 Marcia Boyle co-founded IDF, the national nonprofit patient organization dedicated to people with primary immunodeficiency diseases (PI) after her son was diagnosed with a PI. Following his diagnosis, Marcia soon realized and was deeply concerned to find there were no educational materials and no advocacy groups for people with PI like her son John. Marcia formed a group of other individuals who were interested in making a difference to this community, including expert immunologists from Johns Hopkins Hospital, where her son was treated, and other major medical centers.

What started as a volunteer-led organization, being run by a young mother from her kitchen table, has now evolved into an internationally-recognized patient organization dedicated to improving the diagnosis, treatment and quality of life of people with PI.

Since the beginning, volunteers have been at the heart of what we do. They contribute to the overall mission of IDF by providing another layer of skill and compassion to our team. This Volunteer Appreciation Week, celebrated April 15-21 in 2018, we want to thank our IDF volunteers and let them know just how much we appreciate them for all that they do!

Dedicated volunteers from across the country make up IDF Volunteer Network. Many work to increase awareness of PI in local communities. Some serve as Peer Support Coaches to offer encouragement and understanding to others as they live with a PI. Others host networking opportunities, organize fundraising events and advocate for public policies that help people with PI. In all the many ways that IDF volunteers support the PI community, it is our honor to recognize them during Volunteer Appreciation Week.

If you are a current or past IDF volunteer, we thank you. Your effort and hard work never once go unnoticed. We could not be more thankful for such a strong-willed group of individuals who have the passion and drive to work on behalf of the PI community. Thank you.

If you are interested in using your time and talents to help others living with PI, IDF would love to have you. We know that your time is valuable, and we offer flexible options for even the busiest people. For more information, click here.

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