Statement from Horizon Pharma Regarding Hurricane Harvey
At Horizon Pharma, our thoughts continue to be with the people of southeast Texas who are facing devastation caused by Hurricane Harvey. While we work with partners to provide support for the Texas community, we want to ensure that those impacted who are living with urea cycle disorders (UCDs), chronic granulomatous disease (CGD) or nephropathic cystinosis are aware of the following resources.
For those patients currently prescribed a Horizon medicine, please contact our patient support team with any questions, concerns or needs related to our medicines for the following rare diseases:
- UCD: 1-855-823-7878
- CGD: 1-877-305-7704
- Nephropathic cystinosis: 1-855-888-4004
NORD Emergency Relief Programs
The National Organization for Rare Disorders (NORD) has Emergency Relief Fund programs in place for people living with UCDs, CGD or nephropathic cystinosis. These programs are administered, implemented and executed by NORD pursuant to their own criteria. Following is NORD contact information with more information on programs for each disease state.
- CGD: 855-201-5096 or CGDassist@rarediseases.org
- UCD: 855-201-5139 or UCDassist@rarediseases.org
- Nephropathic cystinosis: 855-201-5087 or firstname.lastname@example.org
For those looking to provide support, Horizon Pharma is currently supporting the disaster response efforts of Americares, a health-focused relief organization helping to provide emergency medicine and supplies to those impacted by Hurricane Harvey. You can help our neighbors in Texas with your own donation today by using this link: http://bit.ly/2wdaiEd.