Raise your hand if you knew that you can raise funds for IDF Walk for PI until the end of the year!
The Immune Deficiency Foundation (IDF) understands the challenges in finding a specialist who treats people with primary immunodeficiency diseases (PI). IDF has long maintained a database to help patients and families locate a specialist, but now for the first time ever, that information is available 24/7 with the click of a button.
There are new episodes of the IDF podcast, Primary Immunodeficiency Q&A! If you’re interested in hearing guests talk about what it’s like being a young adult living with PI, check out these episodes of our podcast!
This fall, Americans cast their votes in elections across the country. With the 2018 election results producing new faces on both sides of the aisle and a change in House leadership, it is imperative that all elected representatives are familiar with the unique needs of the PI community. You can help IDF do this!
Last month, the IDF 2018 National Ig Treatment Experiences and Preferences Survey was mailed to select households. Co-developed with immunologists, the survey specifically focuses on patients’ experiences with intravenous immunoglobulin replacement therapy (IVIG) and subcutaneous immunoglobulin replacement therapy (SCIG).
This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe.
Click here for more about the life and work of Dr. Brian Sorrentino, a pioneering researcher at St. Jude’s.
As the end of 2018 approaches, there are certain questions you need to ask yourself about your health insurance. Regardless of how you and your family obtain your health insurance, it is ultimately your responsibility to understand your plan. It is up to you to choose the plan that is right for you and your family’s healthcare needs.
Understanding your plan can have a huge impact on both your health and your finances.
The Immune Deficiency Foundation (IDF) is pleased to report that Indiana is now screening all newborns for Severe Combined Immunodeficiency (SCID).
Over the past year and a half, IDF has met with representatives from the Governor’s office, the Indiana State Department of Health and the state screening lab to advocate for universal SCID screening in Indiana. You can learn more about IDF’s efforts in Indiana here.
In preparation for the upcoming IDF 2019 National Conference, check out some frequently asked questions below to learn more and get ready to join us!