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Remembering Sara LeBien

It is with great sadness that the Immune Deficiency Foundation (IDF) shares the news that Sara LeBien died January 14, 2018.

Sara and her husband Bob were integral in the founding of IDF. They, like the other families and physicians involved in the early days, saw the need for a national organization dedicated to improving the diagnosis and treatment of people with primary immunodeficiency diseases (PI) after their son Mike was diagnosed.

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IDF State Advocacy in the New Year

IDF State Advocacy in the New Year

With the new year approaching, many state legislatures will convene to consider thousands of potential new laws. IDF will continue its state policy work during the upcoming legislative sessions by focusing on efforts in multiple states addressing barriers to medication access, including Iowa, Massachusetts, Michigan, Nevada, New Jersey, Ohio, Oregon and Pennsylvania. 

Participate in the IDF Fever Study

Participate in the IDF Fever Study: Coming Early 2018

IDF has an exciting research project that developed from discussions in the IDF PI CONNECT Research Forum and IDF Friends. Many individuals with PI report having a lower than normal average body temperature. As a result, when they do have signs of an infection, frequently their temperature does not rise to 100.4°F, the threshold upon which doctors begin to prescribe antibiotics. If this occurs, patients who have infections may not receive critical antibiotics due to missed signs of fever.


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