For people with PI, dealing with health insurance and understanding the maze of issues involved can be overwhelming. Often health insurers require additional paperwork to justify the use of the therapy prescribed. Added red tape and follow up phone calls can be frustrating. Even individuals who have adequate insurance coverage often face expensive insurance premiums or high co-payments or coinsurance.
If you are confused about insurance options, or simply lacking affordable health insurance start here to learn the basics and frequently used terms.
How to Choose a Plan
How to Appeal a Denial
AAAAI IVIG Toolkit
www.benefitscheckup.org
Many older people need help paying for prescription drugs, healthcare, utilities and other basic needs. Ironically, millions of older Americans—especially those with limited incomes—are eligible for but not receiving benefits from existing federal, state and local programs. Ranging from heating and energy assistance to prescription savings programs to income supplements, there are many public programs available to seniors in need if they only knew about them and how to apply for them.
www.nfcacares.org
800-896-3650
The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease or the frailties of old age.
www.childrensdefense.org
800-233-1200
The Children’s Defense Fund is a non-profit organization devoted to children’s issues, including the Children’s Health Insurance Program.
www.familiesusa.org
202-628-3030
Families USA is a non-profit organization dedicated to the achievement of high-quality, affordable health and long-term care for all Americans. The website contains state and national resources.
www.familyvoices.org
888-835-5669
Family Voices is a national organization that provides information and education concerning the healthcare of children with special health needs.
www.healthinsurance.org
A resource for families, individuals and the self-employed, the Health Insurance Resource Center provides the tools to become a better-informed health insurance consumer.
www.insurekidsnow.gov
This site provides links to state child and adolescent health insurance programs.
www.invisibledisabilities.com
The Invisible Disabilities Association (IDA) helps those living with various conditions, as well as their loved ones, through their website, articles, literature, projects and seminars.
www.miracleflights.org
800-359-1711
Provides children and their families free flights to distant, specialized care and second opinions.
www.ncqa.org
The National Committee for Quality Assurance (NCQA) is a private, not-for-profit organization dedicated to assessing and reporting on the quality of managed care plans.
www.cslbehring.com
IgIQ Resource Hotline: 877-355-IgIQ (877-355-4447)
CSL Behring manufactures Hizentra, Carimune and Privigen.
www.grifols.com
Grifols Customer Support Center: 888.GRIFOLS (888-474-3657)
Gamunex Connexions Program (comprehensive support program): 888-694-2686
Grifols manufactures Flebogamma DIF and Gamunex-C.
www.horizonpharma.com
TranscendRare
877-305-7704
Horizon Pharma manufactures Actimmune.
Click here for more information about financial aid available for patients in need of DHR Testing for CGD diagnosis.
Product Information: 866-634-2765
Coverage Assistance and Patient Access Program: 877-534-9627
Leadiant Biosciences manufactures Adagen.
www.octapharma.com
Octapharma Support Center: 800-554-4440
Octapharma manufactures Octagam.
www.MyIgSource.com
MyIgSource: 855-250-5111
Shire manufactures Cuvitru, Gammagard Liquid, Gammagard S/D and HyQvia.
