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November 30 2018
Patients

Since You Asked: Question & Answer (November 2018)

POSTED BY: rdelaney

This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: My son is shopping for a health plan in the Marketplace. He is worried he will not be able to afford his treatment if he picks a plan that does not have good coverage for IVIG therapy. What should he be looking for? How

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November 27 2018
Uncategorized

Pioneering researcher of X-SCID Dr. Brian Sorrentino dies

POSTED BY: rdelaney

Click here for more about the life and work of Dr. Brian Sorrentino, a pioneering researcher at St. Jude’s.

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November 19 2018
Healthcare Reform

Health Insurance: What You Need to Know before the End of the Year

POSTED BY: rdelaney

As the end of 2018 approaches, there are certain questions you need to ask yourself about your health insurance. Regardless of how you and your family obtain your health insurance, it is ultimately your responsibility to understand your plan. It is up to you to choose the plan that is right for you and your family’s healthcare needs.

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November 16 2018
Advocacy, SCID

Indiana Now Screening Newborns for SCID

POSTED BY: rdelaney

The Immune Deficiency Foundation (IDF) is pleased to report that Indiana is now screening all newborns for Severe Combined Immunodeficiency (SCID). Over the past year and a half, IDF has met with representatives from the Governor’s office, the Indiana State Department of Health and the state screening lab to advocate for universal SCID screening

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October 31 2018
PI

Raising Awareness for Plasma Donation

POSTED BY: rdelaney

International Plasma Awareness Month Throughout the month of October, IDF highlighted the importance of plasma donation and why plasma donors are truly lifesavers to many people living with PI. We want to thank those who donate plasma so many in our community can stay healthy. The majority of people diagnosed with PI have defects in their immune

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