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May 31 2018
Research

2018 IDF Research Grant Awardees

POSTED BY: rdelaney

IDF is pleased to announce the recipients of the 2018 IDF Research Grants, which support well-defined research projects that have a specified benefit for improving the treatment, health, disease management or diagnosis of people with primary immunodeficiency diseases (PI). Lori Broderick, MD, PhD – University of California, San Diego, "Role of

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May 31 2018
Community

Since You Asked: Question & Answer (May 2018)

POSTED BY: rdelaney

These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: Life ExpectancyQuestion 2: Managed Care Plans Question:  I am 45 years old and have recently been diagnosed with Common Variable Immune Deficiency (CVID). Since I will be starting immunoglobulin (Ig)

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May 24 2018
Awareness, Community, Events, Family, Walk for PI

One Mom's Reasons to Participate in IDF Walk for PI

POSTED BY: kmcmahon

“I walk because my kids deserve a cure; they are worth it.” One Mom’s Reasons to Participate in IDF Walk for PI “I walk because my kids deserve a cure; they are worth it,” says Katie Knobl, who has participated in IDF Walk for PI in Philadelphia for the past four years and is a mom of two young boys with primary immunodeficiency diseases (PI). “

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May 09 2018
Education, Patients, PI

“How Can I Have an Allergy If I Have a Weak Immune System?”

POSTED BY: rdelaney

Understanding Allergies and Primary Immunodeficiency By Joshua D. Milner, MD National Institute of Allergy and Infectious Diseases, National Institutes of Health Having allergies when you also have a primary immunodeficiency can make anyone’s head spin (or sneeze). Allergies are tricky enough as it is, with different definitions of what an

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April 30 2018
Awareness, Community, Volunteer

IDF Volunteer Scott Bywater: Giving Hope to Others on the Same Path

POSTED BY: kmcmahon

Receiving a primary immunodeficiency (PI) diagnosis sparks a mix of emotions—some may feel relieved to finally get a diagnosis after many years of illness and some may experience uncertainty about what the future will hold and how daily life will change. IDF volunteer and community member Scott Bywater can recall the whirlwind of emotions and

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