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August 23 2018

Urgent: Biologic Withdrawal Information for Gamunex

POSTED BY: AFreestone

  Grifols Therapeutics LLC initiated a voluntary withdrawal of Gamunex on 08-17-2018. Click here to read the notification from the Patient Notification System.

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August 21 2018
Awareness, Community, Volunteer

IDF Volunteer Meghean Feidelman: Making a Difference, One Person at a Time

POSTED BY: kmcmahon

One of Meghean Feidelman’s first memories is a chest x-ray at three-years-old. This was the beginning of a 40-year arduous journey before the unusual cause of her symptoms would be discovered. Along the way, doctors treated her for a variety of symptoms, but none identified the underlying cause. Everything changed when she finally saw a new doctor

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August 21 2018
Research

Immune Deficiency Foundation (IDF) Announces 2018 Research Grant Recipients

POSTED BY: AFreestone

Towson, MD – August 21, 2018 – The Immune Deficiency Foundation (IDF) recently announced it will be awarding four new grants in the second year of the IDF Research Grant Program. Established in 2015, the grants are made possible by funds set aside by the IDF Board of Trustees that are raised via IDF Walk for Primary Immunodeficiency (PI) events

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July 27 2018

Since You Asked: Question & Answer (July 2018)

POSTED BY: rdelaney

These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: Specific Antibody DeficiencyQuestion 2: Traveling with a PI Question: My doctor is going to test me for Specific Antibody Deficiency. I had a doctor test this many years ago, and the results were “

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July 25 2018
Awareness, Research

IDF 2018 National Immunoglobulin (Ig) Treatment Survey Will Launch this fall!

POSTED BY: kmcmahon

The Immune Deficiency Foundation (IDF) 2018 National Immunoglobulin (Ig) Treatment Survey will be available in the fall and will be mailed to a randomized group of households in the IDF community. The results from our previous National Ig Treatment Surveys, conducted in 1996, 2003, 2008 and 2013, have dramatically helped patients, families,

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