Connect with your peers
Join a caring community that connects people and patients who share similar experiences with primary immunodeficiency (PI).
-
Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
-
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
-
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
-
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
IDF Peer Support Program
You are not alone. Life with PI can feel isolating, but there are others out there who know and understand what you’re going through. The IDF Peer Support Program is a free resource connecting individuals with trained volunteers who have personal experience with PI. It is confidential and available to patients, parents, family members, friends, and caregivers.
To connect with someone who can be matched to your unique situation (diagnosis, age of child, particular life management challenges), you can contact IDF through Ask IDF or call 410-321-6647 and a staff member will arrange for a peer support volunteer to contact you by phone or email based on your needs and preferences.
How does it work?
IDF’s trained peer support volunteers are individuals with diverse backgrounds and include individuals and family members of all ages. They’re here to listen to you–and to empathize with you.
You’ll connect with volunteers who can:
- Share their experiences
- Offer understanding
- Provide information on local resources
- Organize IDF Get Connected groups
- Increase awareness of primary immunodeficiencies in their communities
- Act as advocates in both local and federal public policy arenas
Do you want to become a peer support volunteer?
Get Connected Groups
IDF Get Connected Groups offer individuals diagnosed with PI and their family members the opportunity to connect, share experiences, and receive support in their local communities.
Virtual Caregiver Support Group
Monthly meetings guided by a licensed mental health professional offer an opportunity for caregivers to meet and explore shared experiences. Participants must be 18 years or older and connected to a person with a PI.
Sign up for updates from IDF
Receive news and helpful resources to your cell phone or inbox. You can change or cancel your subscription at any time.
