The IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, 5th Edition contains comprehensive information about the diagnosis and treatment of primary immunodeficiency diseases and life management. This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team.
Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient’s condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.
Previous editions available for download in Spanish and French as well as individual chapters for download at https://primaryimmune.org/patient-family-handbook.
Currently, IDF does not ship publications outside the U.S. We welcome those from outside the U.S. to download the online (PDF) version of the publication. Thank you!