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Primary immunodeficiency diseases (PI) are a group of more than 350 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. Recent history suggests that even small changes to healthcare or health insurance policies can have a negative impact on those with PI.
Immune Deficiency Foundation Guide to Immunoglobulin Replacement Therapy for People Living with Primary Immunodeficiency Diseases
This guide was developed for patients and caregivers to help increase understanding of immunoglobulin (Ig) replacement therapy. An increased understanding puts patients and caregivers in a better position to make informed decisions regarding care. Education about the therapy can also build confidence and create a level of understanding that can reduce a patient’s anxiety about a treatment that can be frightening.
It all started in 2013. Three walks in three cities across the country: Philadelphia, Los Angeles and Chicago. Members of the PI community wanted a way to create awareness about primary immunodeficiency diseases (PI), and IDF Walk for PI soon became their answer.
2013 IDF Walk for PI - Los Angeles
Whether you go to an infusion center or receive your immunoglobulin (Ig) at home, it is imperative that you know what product is being infused into your body. Are you receiving the product that was prescribed for you by your provider?
Calleigh of Ridley Park, PA is a bright 8-year-old girl with a positive attitude who loves dancing and cats. She is also living with hypogammaglobulinemia, a type of primary immunodeficiency disease (PI). As she grew, so did her number of illnesses—despite the previous hope that her disease diagnosed at infancy was transient (she would grow out of it).