The 2017 tax bill that has been in the news recently is nearing enactment as the House of Representatives and the Senate work to reconcile the differences between their versions of the bill through a conference committee. Once the conference committee reconciles the language, it will be voted on and sent to the president for his signature. The two versions of the bill include a number of provisions that, if passed, will impact the primary immunodeficiency (PI) community.
You are here
Thank You for Walking With Us
The 2017 IDF Walk for PI season has officially come to an end, and we couldn’t have done it without you! To all our participants and sponsors, we’d like to thank you for coming together and taking strides towards a better future for those living with PI.
2017 is coming to an end and it’s time for us to tally up the hours you’ve donated this year. If you have visited a plasma center, reached out to your local legislator, spoken to a healthcare provider, or provided other volunteer services to IDF – we want you to tell us all about it!
Our IDF Volunteers are asked to submit service hours for the important work they have done within the IDF community over the course of the year. The information we gather from your reports is used for grant applications and annual reporting for the IDF Volunteer Network.
Consider Offering IDF Your Time & Input
In October, the IDF 2017 National Patient Survey was mailed out to select households. This week, a second survey packet was mailed for those who had not yet sent back a completed survey. If you’ve received a survey, please consider offering us a few moments of your time by completing the survey once you receive it.
A Simple, Flexible and Tax-Efficiency Way to Give
When you give, you want your charitable contribution to be as effective as possible, as well as being sure your hard-earned money is going to a good cause. A donor-advised fund (DAF) allows you to direct the funds saved there to a nonprofit organization, such as IDF, while still receiving the greatest tax benefits available.
These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe.
Question: Would someone with CVID be able to use the new immunotherapies for certain cancer treatments?
Giving Tuesday, held the Tuesday after Thanksgiving, is a day that focuses on giving – rather than receiving – to those non-profits that mean the most to you.
For this #GivingTuesday, the Immune Deficiency Foundation (IDF) asks that you consider a gift to IDF, helping provide vital resources and programs to people living with primary immunodeficiency diseases (PI).
We understand, however, that finding room in your budget to make a donation can be tricky, so we have a few suggestions. Remember, no donation is too small!
Amber Steinberg is an active member of the PI community. She is a single mother raising her son, River, who is living with Selective IgA Deficiency. While raising a child with PI is a challenge in itself, it is even more of a challenge for Amber who feels that she doesn’t have much of a support system since River “looks healthy” to others. Not everyone understands what a PI is, nor what it looks like.
The Patient Protection and Affordable Care Act (ACA) became law in March 2010 as a means to help make healthcare more affordable and accessible for millions of Americans who either do not have access to or cannot afford health insurance. As a result of the ACA there were several changes to how healthcare related services are delivered covered, reimbursed or distributed. It was thought that these changes, even if small, may have a profound impact on people with primary immunodeficiency diseases (PI).
IDF community member, Stephanie Harville of Kansas City, wrote this piece to share with the PI community on why she participates in IDF Walk for PI – Kansas City.
THIS IS WHY I WILL WALK.