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IPEX Foundation

To improve the treatment, quality of life, and long term outlook for children and adults living with IPEX syndrome through research, support, education, and advocacy to families and patients. 

XLA Life

XLA Life fosters the unification and empowerment of the global X-Linked Agammaglobulinemia (XLA) community through education, advocacy, and initiatives that aim to improve the overall quality of life for those affected by XLA.

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SCID: Questions for your child's healthcare team

September 10, 2023
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SCID newborn screening results fact sheet

September 10, 2023
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Family planning: thinking about the future

September 10, 2023
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SCID: What healthcare providers need to know

September 10, 2023
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SCID family journey

September 10, 2023
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SCID telehealth for American Indians and Alaska Natives

September 10, 2023

FOXN1 deficiency

Also known as nude/severe combined immunodeficiency (SCID), this rare primary immunodeficiency disrupts adaptive immunity and is characterized by congenital athymia, congenital alopecia totalis, and nail dystrophy.

CHARGE Syndrome Foundation

The CHARGE Syndrome Foundation champions the lifelong potential of people with CHARGE syndrome through outreach, education, and research.
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