Publication category:
- Patients and Families
The IDF Patient & Family Handbook for Primary Immunodeficiency Diseases, 5th Edition contains comprehensive information about the diagnosis and treatment of primary immunodeficiency diseases and life management. This book contains general medical information and is intended to provide the patient and family with tools to enhance the communication process and to understand the information they receive from the healthcare team.
Most importantly, this book is not intended to suggest diagnostic approaches or to recommend specific therapy for any patient. Each patient’s condition and treatment is unique and the management of their illness should be customized to their individual medical needs. Medical knowledge and practice can change rapidly. Therefore, this book should not be used as a substitute for professional medical advice.
Previous editions available for download in Spanish and French as well as individual chapters for download at https://www.primaryimmune.org/idf-patient-family-handbook-individual-chapters.
Currently, IDF does not ship publications outside the U.S. We welcome those from outside the U.S. to download the online (PDF) version of the publication. Thank you!
Audience:
- Family member of person with PI
- Person with PI
Patient Lifestage:
- Adults
- Infants and Children
- Teens
- Young Adults
Resource Category:
- Health
Disease Category:
- Ataxia-Telangiectasia
- Chronic Granulomatous Disease
- Common Variable Immune Deficiency
- Complement Deficiencies
- DiGeorge Syndrome
- Hyper IgE Syndrome
- Hyper IgM Syndrome
- Hypogammaglobulinemia
- IgG Subclass Deficiency
- Innate Immune Defects
- MBL deficiency
- NEMO Deficiency Syndrome
- NK Cell Deficiency
- Other Antibody Deficiency Disorders
- Sample Disease
- Selective IgA Deficiency
- Severe Combined Immune Deficiency and Combined Immune Deficiency
- Specific Antibody Deficiency
- Transient Hypogammaglobulinemia of Infancy
- Wiskott-Aldrich Syndrome
- X-Linked Agammaglobulinemia