Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
Get involved today
Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
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Carefully consider participating in research

March 21, 2019

The Immune Deficiency Foundation (IDF) offers many ways to get involved in research, and we routinely work with industry and marketing groups to aid in the recruitment of research studies. IDF takes many precautions, however, to make sure contact comes from and through IDF, and we would never give or sell your personal information to third parties. When IDF contacts our community for research, we ensure that the research is:

Legitimate
Protects the personal health and personal contact information of our community
Does not allow for the sale or resale of your data or personal information

If a company (other than IDF) ever contacts you and asks you to participate in research, please carefully consider your participation. If you have questions or concerns about this, please contact IDF at idfresearch@primaryimmune.org.