To capture the impact the Patient Protection and Affordable Care Act (ACA), passed in 2010, had on those with primary immunodeficiency (PI), as well as to describe the general health insurance experiences of those impacted by PI, IDF conducted a series of web-based surveys of patients in our database in 2014, 2015, and 2016.
This document contains an overview of findings in four focus areas across all three years, as well as a full report:
- Access to care.
- Quality of care.
- Affordability of care.
- Public policy impacts.
