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SCID News

February 24, 2021
SCID, SCID Compass

Video Focuses on Navigating Hospital Stay

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What are some questions you should ask when considering a bone marrow transplant (BMT) for your baby with severe combined immunodeficiency (SCID)? A new video posted to the SCID Compass website provides parents with a brief overview of topics to explore when researching transplant centers. Created by SCID Compass partner Genetic Alliance

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February 18, 2021
SCID, SCID Compass

'Blessed with unexplainable miracles'

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This SCID Compass blog post is part of IDF’s Stories Project, designed to provide a venue for those living with PI to share their experiences. Some are first-person accounts; others are written by IDF staff. If you have a story you’d like to share, email us at stories@primaryimmune.org. In this Stories Project blog, Maria Hope Diaz and her mother

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January 21, 2021
SCID, SCID Compass

Video Spotlights SCID Treatment Basics

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When parents receive a diagnosis of severe combined immunodeficiency (SCID) for their baby, they don’t have much time to make a treatment decision. The sooner the baby is treated, the less chance the baby will develop an infection. Because babies with SCID have no functioning immune system, an infection could be life-threatening. Infection also

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January 13, 2021
SCID, SCID Compass

A Closer Look at Newborn Screening

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A few drops of blood from a newborn can reveal so much about the health of a baby. The testing of those blood droplets, along with tests for hearing loss and critical congenital heart conditions, comprise a routine newborn screening. And while the hearing test and heart test are relatively simple evaluations, the blood screening is more complex

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January 08, 2021
SCID, SCID Compass

SCID Treatment Requires Lifelong Follow-up

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While treatment for severe combined immunodeficiency (SCID) can restore a person's immune system, the procedure doesn’t signal an end to coping with this life-threatening PI. A reconstituted immune system may fail, and side effects from the treatment may present lifelong challenges. Those with SCID must monitor their immune system and general

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