The SCID Compass program is proud to announce the third annual SCID Compass Summit, a stakeholder meeting for all individuals impacted by SCID. The 2021 SCID Compass Summit offers a broad range of topics that appeal to a wide audience, ranging from parents to health providers.
Offered on a virtual platform, the SCID Compass Summit takes place on April 29 and 30, from 11 a.m. to 3 p.m., and features over 15 speakers from all facets of the SCID landscape.
Presentations explore specific components and activities of the SCID Compass program, which is funded by the Health Resources Services Administration. The sessions highlight the current state of SCID in the U.S. and the work being done to support those who are navigating this rare condition.
The 2021 SCID Compass Summit delves into the intersection of SCID and the following areas: underserved communities, premature infants, newborn screening, the COVID-19 vaccine, family planning, telehealth, and coping with uncertainties.
Speakers and topics include:
- “COVID-19, Vaccines, Treatments, and SCID” presented by Harry Malech, MD, from the National Institute of Health
- “Coping with the Uncertainties of a SCID Diagnosis” presented by Barbara Biesecker, PhD., Sara Andrews, MPH; and Melissa Raspa, PhD., all of RTI International
- “10+ Years of SCID Screening in New York: Evolution of Primary and Secondary Molecular Screening” presented by Michele Caggana, Sc.D., and Colleen Stevens, PhD., both of the New York State Screening Program
- “Thinking About the Future: Navigating Family Planning” presented by Natasha Bonhomme and Jamie Loey, MPH, both of Expecting Health at Genetic Alliance
- “SCID Variants and the Irish Family” presented by Jolan Walter, PhD., of Johns Hopkins All Children’s Hospital, and Stan Goldman, MD, of Texas Oncology/Medical City Dallas
- “SCID Screening for Premature Infants”
- “NBS for SCID - Do Preterm Infants Require Special Consideration?” presented by Mei Baker, MD, FACMG, of the NBS Laboratory at Wisconsin State Laboratory of Hygiene
- “Clinical Perspective of Screening Premature Infants for SCID” presented by Mary Beth Fasano, MD, MSPH, of the University of Iowa Carver College of Medicine
- “APHL’s Study on SCID Screening for Premature Infants” presented by Ruthanne Sheller, MPH, of NewSTEPS, APHL
- “Telehealth: Opportunities for Use with American Indian and Alaska Native SCID Families” presented by Saira Haque, PhD., of RTI International
- “Spanish Language Introduction to IDF, SCID, and SCID Compass” presented by Ashley Ferreira, MPA, of IDF
To register for the SCID Compass Summit, click here.