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Community in Action

Discover IDF Channels

Sponsored by CSL Behring

IDF Reel Stories is a video community designed to encourage and empower fellow patients and their loved ones. Viewers are able to select from a robust playlist of video testimonials that touch us on some level – whether as individuals, families or as members of the IDF community. The video stories cover a wide array of issues and topics and can be searched by Status, Patient Life Stage, Messages, Disorders, and Treatment Options.

 

Sponsored by CSL Behring

Now is the time to make sure the unified voice of the IDF community is heard! IDF Advocacy Channel uses social media to communicate the powerful message of our patients and their stories to impact policy decisions. Focusing on patient advocacy on behalf of breaking public policy issues, this channel activates our patient volunteers and family members by sharing their personal stories.

The IDF community is a creative and committed group of individuals who are busy reaching out to help spread awareness and education about primary immunodeficiency diseases. Tune in to see what is happening!

The IDF ePHR is an electronic personal health record for patients with primary immunodeficiency diseases that will help you store, track, share and organize your health information. The IDF ePHR video channel contains helpful hints to successfully use the IDF ePHR in several how-to videos, and also includes educational videos that explain all of the offerings of IDF ePHR and PI CONNECT.

Other Media Channels

IDF is pleased to provide the presentations from the IDF 2017 National Conference. We hope the PI community can learn from the valuable content shared.

IDF is pleased to provide the presentations from the IDF 2015 National Conference. We hope the PI community can learn from the valuable content shared.

The IDF Young Adult Webinar Series was developed specifically for young adults to meet the needs and interests of this group.

Discusses the facts, myths, hopes and fears that young adults living with primary immunodeficiency diseases face, while celebrating accomplisments, achievements and the ability to live life as a 'normal' teenager.

In Tune with Your Immune System is a video for teens that compares the human immune system to a rock band; it needs all the parts functioning to make great music!