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March 29 2018
Awareness, Community, Events, PI

5 Ways to Promote #PIawareness This April

POSTED BY: rdelaney

National PI Awareness Month & World PI Week Trying to explain that you have a primary immunodeficiency disease (PI) can be complicated, especially when many people haven’t heard of your disease before. While people may not learn overnight what PI is, there are ways to spread the word and raise awareness for PI. Throughout the month of April

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March 29 2018

Since You Asked: Question & Answer (March 2018)

POSTED BY: rdelaney

These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: FatigueQuestion 2: Teenagers With PI Question:  I was diagnosed with CVID and have been on intravenous immunoglobulin replacement therapy (IVIG) for one year. My IgG levels are now in the normal range,

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March 21 2018
Awareness, Community

Become a hero for the PI community!

POSTED BY: kmcmahon

As a loyal member of the primary immunodeficiency (PI) community, the Immune Deficiency Foundation (IDF) invites you to spread awareness and become one of TZ’s PI Heroes!  We’re kicking off TZ’s PI Heroes in honor of National Primary Immunodeficiency Awareness Month this April. What does it mean to become one of TZ’s PI Heroes? After a quick

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March 21 2018
Plasma Partners Program, Volunteer

Volunteer Spotlight - Frank Meuers

POSTED BY: kmcmahon

Because the health of many people living with primary immunodeficiency diseases (PI) relies on plasma protein therapies, the Immune Deficiency Foundation (IDF) considers plasma donations a critical component of the PI community. For many living with PI, immunoglobulin (Ig) replacement therapy is the only treatment available for their chronic

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March 12 2018
Awareness, Community, Events, Family, Fundraising, Volunteer, Walk for PI

One Woman’s IDF Walk for PI – Virtual Walk Story Will Encourage You to Join Along!

POSTED BY: kmcmahon

Andi Creed is living with Common Variable Immune Deficiency (CVID) and was diagnosed late into her adult years. Andi is a strong advocate for IDF Walk for PI – Virtual Walk, and recommends it to those who want to participate but don’t live near a walk location. Pictured: Andi Creed IDF Walk for PI gives Andi hope for the future, so once she

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