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December 13 2017
Awareness, Community, Patients

Since You Asked: Question & Answer (December 2017)

POSTED BY: rdelaney

  These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: TamifluQuestion 2: Family & Medical Leave Act  Question: I have Specific Antibody Deficiency (SAD) and am concerned that I will get the flu despite getting vaccinated. If I do get the flu am I

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December 08 2017
Research

Interested in Participating in an IVIG Study?

POSTED BY: rdelaney

IVIG Study Opportunity The CIIC (Consortium of Independent Immunology Clinics) is currently conducting an IVIG study for a 12-month period. They are looking to enroll children ages 2-16 for the study. The study will cover the costs of the IVIG  Participants will also receive a stipend for each visit to the clinic This is an immediate

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December 08 2017
Advocacy, PI

Planning for the Future: Immune Globulin Potency in the 21st Century Workshop

POSTED BY: rdelaney

The Immune Deficiency Foundation, in cooperation with the Center for Biologics Evaluation and Research (CBER) of the Food and Drug Administration (FDA), the Plasma Protein Therapeutics Association (PPTA), and the National Institute of Allergy and Infectious Diseases (NIAID), participated in the Workshop on Immune Globulin Potency in the 21st

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December 07 2017
Awareness, Community, Fundraising, Walk for PI

Mission Possible Award Winner: Nefar Moran

POSTED BY: kmcmahon

Although Nefar Moran is new to the primary immunodeficiency (PI) community, her experience participating in IDF Walk for Primary Immunodeficiency Boston has been extremely rewarding, and she has gone above and beyond to raise funds for the Immune Deficiency Foundation (IDF). This past walk season, Nefar was a member of Team Shire, led by Team

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December 05 2017
Advocacy, In the News

What Does the Tax Bill Mean for the Primary Immunodeficiency Community?

POSTED BY: AFreestone

The 2017 tax bill that has been in the news recently is nearing enactment as the House of Representatives and the Senate work to reconcile the differences between their versions of the bill through a conference committee. Once the conference committee reconciles the language, it will be voted on and sent to the president for his signature. The two

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