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January 31, 2019

Since You Asked: Question & Answer (January 2019)

POSTED BY: rdelaney

This article originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: I was recently diagnosed with Common Variable Immune Deficiency (CVID) and started weekly subcutaneous immunoglobulin (Ig) treatments 6 weeks ago. I’m concerned because I’m still getting infections and feel very fatigued

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January 25, 2019

A Family Affair: One Family’s Journey with Severe Combined Immunodeficiency (SCID)

POSTED BY: rdelaney

Severe Combined Immunodeficiency (SCID) is a potentially fatal type of primary immunodeficiency disease (PI). This condition is generally considered to be one of the most serious types of PI. Today, however, early diagnosis of SCID can make possible lifesaving interventions. Join the Immune Deficiency Foundation (IDF) as we speak with Nicole

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January 22, 2019
Awareness, Community, Patients, PI, SCID

Helping Families Take Charge of Adenosine Deaminase (ADA)-Severe Combined Immunodeficiency (SCID)

POSTED BY: rdelaney

Although rare, Adenosine Deaminase (ADA)-Severe Combined Immunodeficiency (SCID) is one of the most serious primary immunodeficiency diseases (PI). Children with ADA-SCID lack immune protection against bacteria, viruses, and fungi and are prone to repeated and persistent infections. Fortunately, effective treatments exist that can treat the

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January 18, 2019
Patients, PI

Medical vs. Pharmacy Benefits: The Differences in How Immunoglobulin (Ig) Therapy Is Covered

POSTED BY: rdelaney

Immunoglobulin (Ig) replacement therapy is a lifesaving, lifelong treatment for many people with primary immunodeficiency diseases (PI), specifically those who are antibody deficient. For those who rely on this treatment, you need to know how your therapy is covered under your insurance. Is it part of your pharmacy benefit or your medical benefit

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January 15, 2019

Immunoglobulin Product Availability Issues: The Sky Is Not Falling but the World Needs More Plasma


By: John G. Boyle, President & CEO The Immune Deficiency Foundation is focused on providing accurate information to people living with primary immunodeficiency diseases (PI). We regularly hear things—either directly or indirectly—about issues that could affect the availability of immunoglobulin (Ig) products, which are lifesaving, lifelong

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