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April 30 2018
Awareness, Community

What does raising PI awareness mean to you? How can you continue raising awareness throughout the year?

POSTED BY: kmcmahon

Trying to explain that you have a primary immunodeficiency disease (PI) can be complicated, especially when most people haven’t ever heard of your disease before. PI awareness increases the understanding and recognition of these chronic, rare diseases that can make a huge difference in the lives of those who are living with PI. While people may

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April 30 2018

The New and Improved IDF Friends is Here!

POSTED BY: rdelaney

We’re proud to announce the launch of the newly updated IDF Friends website! Since 2009, IDF Friends has provided individuals with PI and their families with a supportive, private online community where members can post discussion topics, ask questions, share stories, get support, connect with others in similar situations and more. IDF Friends

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April 30 2018

IDF Advocates Take on Washington, DC

POSTED BY: rdelaney

IDF Advocacy Day 2018 On March 22, 2018, 49 advocates from the primary immunodeficiency disease (PI) community took to Capitol Hill to advocate for issues important to individuals with PI. IDF is grateful to have such passionate advocates whose motivation was not diminished by the snowstorm that unfortunately prevented some participants from

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April 30 2018
Walk for PI

IDF Walk for PI: Are You Ready to Register?

POSTED BY: rdelaney

Are you ready to register? Registration for IDF Walk for Primary Immunodeficiency (PI) 2018 is officially open! You can now register and start getting your friends and family involved. Atlanta (10/27)Boston (9/30)Chicago (9/30)Cleveland (9/23)Dallas (11/10)Fort Lauderdale (11/17)Kansas City (10/27)Los Angeles (11/4)New York City (10/21)

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April 30 2018

Since You Asked: Question & Answer (April 2018)

POSTED BY: rdelaney

These Questions & Answers originally appeared in the IDF monthly e-newsletter, Primary Immune Tribune. Click here to subscribe. Question 1: Hypogammaglobulinemia and CVIDQuestion 2: Selective IgA Deficiency and Infections  Question:  Is Hypogammaglobulinemia the same as Common Variable Immune Deficiency (CVID)? Answer: No, but sometimes

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