Join the Immune Deficiency Foundation on June 20-22, 2019 in National Harbor, MD (outside of Washington, DC) for the world’s largest gathering of people living with primary immunodeficiency diseases! Register today: www.idfnationalconference.org.
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Although rare, Adenosine Deaminase (ADA)-Severe Combined Immunodeficiency (SCID) is one of the most serious primary immunodeficiency disorders. Children with ADA-SCID lack immune protection against bacteria, viruses, and fungi and are prone to repeated and persistent infections. Fortunately, effective treatments exist that can treat the disorder. Join the Immune Deficiency Foundation as we speak with Dr.
Severe Combined Immunodeficiency (SCID) is a potentially fatal primary immunodeficiency. This condition is generally considered to be the most serious of the primary immunodeficiencies. Today, early identification of SCID can make possible life-saving interventions. Join the Immune Deficiency Foundation as we speak with Nicole Locastro, a mother of a child diagnosed with SCID through newborn screening. Nicole offers us some thoughtful insights into the family experience and some strategies her family employed along the way.
La importancia de participar en las investigaciones: La experiencia de una Familia (The Importance of Participating in Research: One Family’s Experience)
Escuchen mientras que padres Carolina y Mauricio hablan sobre la importancia de participar en las investigaciones del Immune Deficiency Foundation para mejorar el futuro diagnóstico y tratamiento de pacientes viviendo con inmunodeficiencia primaria.
(Listen as parents Carolina and Mauricio describe the importance of participating in Immune Deficiency Foundation research to improve the future diagnosis and treatment of those living with primary immunodeficiency diseases (PI).)
The Immune Deficiency Foundation (IDF) would like to thank you for another memorable year in 2018! We're looking forward to an exciting year in 2019, and we hope to see you at our IDF 2019 National Conference on June 20-22 in National Harbor, MD.
IDF President & CEO John G. Boyle shares why Giving Tuesday is so important to the IDF community.
Join us for the IDF Retreats 2018 in Cleveland, OH from July 20-22 and St. Augustine, FL from August 10-12. IDF Retreats are weekend gatherings designed for families to have fun, learn and connect with others! Register now at: www.primaryimmune.org/idfretreats. IDF Retreats 2018 are supported by CSL Behring, Grifols, Shire, Horizon Pharma, Octapharma, and Leadiant Biosciences.
Happy Mother's Day to all Zebra Moms from the Immune Deficiency Foundation (IDF). Please donate to IDF in honor of your mom today! Go to www.primaryimmune.org/mothersday to donate now.
Have you ever thought about switching between IVIG and SCIG or vice versa? Dr. Mark Ballow discusses the advantages and disadvantages of both IVIG and SCIG to help decide which one is best for you.
This program is supported by a charitable donation from CSL Behring.
Immune Deficiency Foundation President & CEO John G. Boyle has a few kind words to say to IDF Walk for PI 2017 participants!