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Immune Deficiency Foundation - Community in Action

“The Immune Deficiency Foundation is first and foremost a resource for people living with primary immunodeficiency diseases. And what we provide has grown tremendously over the years. We’re advocates. We’re educators. We’re researchers. But most importantly, we’re a community.” – Marcia Boyle, IDF President & Founder. Learn more about the impact the Immune Deficiency Foundation (IDF) has on people living with primary immunodeficiency diseases (PI) and what the future holds for the PI community.

Farewell to Marcia Boyle, Immune Deficiency Foundation President & Founder

Following more than 37 years of skilled and passionate leadership, Immune Deficiency Foundation (IDF) President & Founder Marcia Boyle announced her plans to retire in 2017. Marcia co-founded IDF in 1980 after her son’s diagnosis with a primary immunodeficiency disease (PI). Following his diagnosis, Marcia soon realized and was deeply concerned to find there were no educational materials and no advocacy groups for people with PI like her son John.

Mystery Diagnosis on Primary Immunodeficiency

Mystery Diagnosis about a specific type of Primary Immunodeficiency (PI) called Common Variable Immunodeficiency Disease (CVID).

Common Variable Immune Deficiency (CVID) is a frequently diagnosed primary immunodeficiency, especially in adults, characterized by low levels of serum immunoglobulins and antibodies, which causes an increased susceptibility to infection. While CVID is thought to be due to genetic defects, the exact cause of the disorder is unknown in the large majority of cases.


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