PI CONNECT is a tool designed to directly connect patients to research being conducted in the field of primary immunodeficiency (PI) diseases.
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The IDF ePHR is the electronic personal health record designed for the primary immunodeficiency (PI) community. Featuring innovative technology, IDF ePHR uses an advanced online system to transform how patients with PI manage their health!
Learn how to sync your IDF ePHR with Microsoft HealthVault
Learn how to use the IDF ePHR Health Calendar.
Joe Selby, MD, MPH, Executive Director of the Patient-Centered Outcomes Research Institute (PCORI), explains how patient involvement is the future of research and how the Immune Deficiency Foundation's PI CONNECT enables patients to take part in it.