Understanding primary immunodeficiency (PI)
Understanding PI
The more you understand about primary immunodeficiency (PI), the better you can live with the disease or support others in your life with PI. Learn more about PI, including the various diagnoses and treatment options.
Learn more about PI
Living with PI
Living with PI
Living with primary immunodeficiency (PI) can be challenging, but you’re not alone—many people with PI lead full and active lives. With the right support and resources, you can, too.
Learn more about living with PI
Get involved
Get involved
Be a hero for those with PI. Change lives by promoting primary immunodeficiency (PI) awareness and taking action in your community through advocacy, donating, volunteering, or fundraising.
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Advancing research and clinical care
Advancing research and clinical care
Whether you’re a clinician, researcher, or an individual with primary immunodeficiency (PI), IDF has resources to help you advance the field. Get details on surveys, grants, and clinical trials.
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A family affair: One family’s journey with severe combined immunodeficiency (SCID)

January 25, 2019

Severe combined immunodeficiency (SCID) is a potentially fatal type of primary immunodeficiency (PI). This condition is generally considered to be one of the most serious types of PI. Today, however, early diagnosis of SCID can make possible lifesaving interventions.

Join the Immune Deficiency Foundation (IDF) as we speak with Nicole Locastro, a mother of a child diagnosed with SCID through newborn screening. Nicole offers us some thoughtful insights into the family experience and some strategies her family employed along the way.

We appreciate Nicole telling her family’s story. Would you like to share your experiences with IDF? Click here to e-mail us. You can inspire and educate others by sharing what you’ve gone through!

This webinar was supported by Leadiant Biosciences.