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February 25, 2020

Why are Patients Struggling to Access Life-saving Immune Globulin

POSTED BY: AFreestone

Immune deficient patients across the world are having issues getting access to the only drug that can keep them alive: immune globulin. Allie Nawrat investigates what is behind this ongoing shortage. Read her article in the latest issue of Pharma Technology Focus at: https://pharma.nridigital.com/pharma_mar20/

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February 24, 2020
Events, Fundraising, Walk for PI

Save the Date: IDF Walk for PI 2020

POSTED BY: rdelaney

The moment is here! We are officially announcing our IDF Walk for PI 2020 dates and locations. Join the Immune Deficiency Foundation (IDF) by saving the date for the walk closest to you so you can support the individuals and families affected by primary immunodeficiencies (PI).  IDF Walk for PI 2020 National (A-Z) Boston, MA: Sunday, October 4

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February 24, 2020
Events, Walk for PI

Donor Spotlight: Lucinda and Robert Cathcart

POSTED BY: rdelaney

                         Lucinda and RobertRobert Cathcart was diagnosed with a PI in 2009. Shortly after receiving his diagnosis, his mother, Lucinda, discovered IDF Walk for PI. Lucinda states, “In the beginning, when I found out about the walks, I felt it would be a great way to help shift our focus on my son’s primary immunodeficiency (PI)

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February 24, 2020
Advocacy

IDF Continues Fight to Convert Medicare IVIG Demo into Permanent Benefit

POSTED BY: rdelaney

In 2012, in response to advocacy by the Immune Deficiency Foundation, Congress passed a law establishing a unique Medicare demonstration project that allowed enrollees with primary immunodeficiency (PI) to receive intravenous immunoglobulin therapy (IVIG) in the home. The IVIG demonstration (demo project), which was extended in 2017, aids

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February 20, 2020
Living with CGD

IDF Launches New Web-based Resource for CGD Community

POSTED BY: AFreestone

The Immune Deficiency Foundation (IDF), a patient organization supporting people affected by primary immunodeficiency (PI), announces the launch of a new website designed to assist persons with Chronic Granulomatous Disease (CGD). CGD is a PI that prevents the body’s cells from producing chemicals to fight off common germs. As a result, a person

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