Treatment in clinical trials an option for some forms of SCID
When a baby is born with severe combined immunodeficiency (SCID), parents are faced with making a major decision about treatment within a short period of time. A baby with SCID has no immune system and infections of any kind can be fatal. Treatment can provide a baby with a functioning immune system and must take place within a baby’s first year
Read MoreMaking Needle Pokes Easier for the CGD Community
Interferon (IFN) gamma is sometimes used in conjunction with antibiotics and other treatments as a preventative against infection for people with Chronic Granulomatous Disease (CGD). It is given by injection, usually several times per week. For some patients and parents, these needle pokes can be incredibly hard. If you are one of these
Read MoreFrontiers in Immunology publishes SCID Compass team research article
Members of IDF’s SCID Compass program recently earned recognition for their hard work in discerning the needs of parents whose children have severe combined immunodeficiency, or SCID. In early May, Frontiers of Immunology, a scientific journal, published the article “Information and Emotional Support Needs of Families Whose Infant Was Diagnosed
Read MoreCOVID -19 Video Update, May 8
Kathleen Sullivan, MD, PhD is the Chief of Allergy and Immunology at Children's Hospital of Philadelphia and a member of the IDF Physician Advisory Committee. She put together a video update with some helpful information about COVID-19. This video focuses on immunology and treatment and is divided into the following sections: Antiviral Drugs
Read MoreBuilding Community of Young Adults with CGD
Transitioning into adulthood is both exciting and overwhelming, often marked by changes and challenges. It is a time of discovering ownership, exploring educational and career paths, forming relationships, traveling, and taking responsibility for your healthcare. But living with a chronic condition, such as Chronic Granulomatous Disease (CGD),
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