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September 13 2017
Awareness, Community, Fundraising, Walk for PI

Tips from TZ: You Can Still Make a Difference!

POSTED BY: kmcmahon

In my last two blogs, I talked about reaching out to your network and planning fun activities to raise funds for your IDF Walk for Primary Immunodeficiency team. If you’re feeling stuck, there is still so much more you can do! You can still make a difference. The average person needs to be asked three times in order to take action. Think of

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September 11 2017
In the News, Sponsors

RMS Receives FDA Clearance for 510(k)

POSTED BY: AFreestone

RMS Freedom Infusion System Cleared for Both Subcutaneous and Intravenous Indications CHESTER, NY / September 05, 2017 / Repro Med Systems, Inc. dba RMS Medical Products (OTCQX: REPR) announces the FDA issued a new 510(k) clearance for the RMS “Integrated Catch-Up Freedom Syringe Driver Infusion System” effective August 31, 2017.  The Freedom

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September 06 2017
Community, Events, Fundraising, Walk for PI

Tips from TZ: Kick Things Up a Notch!

POSTED BY: kmcmahon

If you followed last week’s tips, then you have already reached out to your network to help raise funds for IDF Walk for Primary Immunodeficiency (PI) 2017. Now, let’s take things to the next level! There is still so much more that you can do! Here are some fun ideas of activities you can do to help raise funds for your team: Wine glass paint

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September 05 2017
Community, Family

Laura Oberkfell Shares Her Story

POSTED BY: kmcmahon

Laura Oberkfell is a member of the PI community and wanted to share her story. “We are fine, we are blessed, we are incredibly lucky...this is what I tell myself and others as we continue our unexpected journey. Lives do not go as planned, and that is okay. You live, love and learn a lot. I've been inspired to share a bit of our story as both of

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September 05 2017
In the News, Sponsors

Statement from Horizon Pharma Regarding Hurricane Harvey

POSTED BY: rdelaney

Statement from Horizon Pharma Regarding Hurricane Harvey At Horizon Pharma, our thoughts continue to be with the people of southeast Texas who are facing devastation caused by Hurricane Harvey. While we work with partners to provide support for the Texas community, we want to ensure that those impacted who are living with urea cycle disorders (

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