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November 15, 2019

What You Need to Know About Health Insurance before the End of 2019

POSTED BY: mtewey

As the end of 2019 approaches, there are certain questions you need to ask yourself about your health insurance. Regardless of how you and your family obtain your health insurance, it is ultimately your responsibility to understand your plan. It is up to you to choose the plan that is right for you and your family’s healthcare needs.

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November 15, 2019
Awareness, Plasma Partners Program

PI Community Rallies to Promote Plasma Donations

POSTED BY: rdelaney

With the recent plasma shortage, the primary immunodeficiency disease (PI) community has mobilized in a variety of ways to create awareness of the importance of plasma donations. Since earlier this year, IDF began putting out the call for help and we have welcomed more than 30 new Plasma Awareness Volunteers to our existing team of 160. These

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November 08, 2019

ABC TV’s The Good Doctor - 11/11/19 - Significant Concerns Over Portrayal of Primary Immunodeficiency Diseases

POSTED BY: AFreestone

IDF has been alerted to the fact that the episode of The Good Doctor airing on ABC TV on Monday, November 11, 2019 will feature a storyline about a person living with a primary immunodeficiency disease (PI). While this type of exposure can lead to increased awareness of PI, sadly it appears that this show will end up being another in a long line

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November 07, 2019

Urgent: Biologic Withdrawal Information for Gamunex

POSTED BY: AFreestone

Grifols Therapeutics LLC has initiated a voluntary withdrawal of Gamunex.Click here to read the notification from the Patient Notification System.  

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October 29, 2019
Awareness

Gavin’s Jedi: One family’s way of making sense of XLA

POSTED BY:

At the age of 3-years-old, Gavin Angelos, was diagnosed with X-linked Agammaglobulinemia (XLA). After receiving his diagnosis, the Angelos family wasn’t sure how to move forward in life, especially after they realized that none of their friends, peers, or family could relate to or even understand the primary immunodeficiency disease (PI). This

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