You are here

September 12, 2019
Volunteer

Expanding Awareness with Creativity

POSTED BY: mtewey

IDF volunteer Debby Abell has taken the image of the traditional IDF Plasma Awareness Coordinator (PAC) visiting plasma donation centers and reinvented it. Debby became a PAC volunteer in early 2019. Mobility issues prevented her from making the long drive to the closest plasma donation centers, but this did not deter her passion to spread the

Read More
September 06, 2019
Events

Special Event Videos from the IDF 2019 National Conference Are Now Available

POSTED BY:

Videos from the IDF 2019 National Conference special events are now available. Relive the fun if you were there, or be a part of the action if you were unable to attend! The special events from the IDF 2019 National Conference include the Opening Session, IDF Zebra Gala, and Farewell Ceremony. Click here to watch them all!   Don’t forget you

Read More
August 30, 2019
Awareness

Get the Latest News on the Immunoglobulin Product Shortage

POSTED BY: rdelaney

Over the last few months, IDF has fielded hundreds of calls and e-mails about challenges individuals with  PI are facing in accessing immunoglobulin (Ig) products. On August 12, the Food and Drug Administration (FDA) addressed the product shortage, and how it could impact patient care. The supply of donated plasma and the products produced from it

Read More
August 30, 2019
Walk for PI

Who Will Join Your Herd?

POSTED BY: rdelaney

IDF Walk for PI It’s back-to-school time! Whether you’re a student or a parent of a student, you’ll be meeting new peers and teachers, making new friends, and/or reuniting with people you haven’t seen throughout the summer. This is a great time to ask people to join your IDF Walk for PI team! Haven’t created your walk team yet? There’s still

Read More
August 30, 2019
Advocacy

Become a Better Informed, More Active Advocate for the PI Community

POSTED BY: rdelaney

IDF Advocacy Workshop 2019 – Massachusetts Do you or a loved one have a primary immunodeficiency disease (PI), live in Massachusetts and want to strengthen your advocacy skills? On Tuesday, October 8, 2019, IDF will be hosting a state advocacy workshop in Boston, MA for members of the PI community. This interactive workshop will give you a chance

Read More