Receiving a primary immunodeficiency (PI) diagnosis sparks a mix of emotions—some may feel relieved to finally get a diagnosis after many years of illness and some may experience uncertainty about what the future will hold and how daily life will change. IDF volunteer and community member Scott Bywater can recall the whirlwind of emotions andRead More
What does raising PI awareness mean to you? How can you continue raising awareness throughout the year?
Trying to explain that you have a primary immunodeficiency disease (PI) can be complicated, especially when most people haven’t ever heard of your disease before. PI awareness increases the understanding and recognition of these chronic, rare diseases that can make a huge difference in the lives of those who are living with PI. While people mayRead More
We’re proud to announce the launch of the newly updated IDF Friends website! Since 2009, IDF Friends has provided individuals with PI and their families with a supportive, private online community where members can post discussion topics, ask questions, share stories, get support, connect with others in similar situations and more. IDF FriendsRead More
IDF Advocacy Day 2018 On March 22, 2018, 49 advocates from the primary immunodeficiency disease (PI) community took to Capitol Hill to advocate for issues important to individuals with PI. IDF is grateful to have such passionate advocates whose motivation was not diminished by the snowstorm that unfortunately prevented some participants fromRead More
Are you ready to register? Registration for IDF Walk for Primary Immunodeficiency (PI) 2018 is officially open! You can now register and start getting your friends and family involved. Atlanta (10/27)Boston (9/30)Chicago (9/30)Cleveland (9/23)Dallas (11/10)Fort Lauderdale (11/17)Kansas City (10/27)Los Angeles (11/4)New York City (10/21)Read More