Why are Patients Struggling to Access Life-saving Immune Globulin
Immune deficient patients across the world are having issues getting access to the only drug that can keep them alive: immune globulin. Allie Nawrat investigates what is behind this ongoing shortage. Read her article in the latest issue of Pharma Technology Focus at: https://pharma.nridigital.com/pharma_mar20/
Read MoreSave the Date: IDF Walk for PI 2020
The moment is here! We are officially announcing our IDF Walk for PI 2020 dates and locations. Join the Immune Deficiency Foundation (IDF) by saving the date for the walk closest to you so you can support the individuals and families affected by primary immunodeficiencies (PI). IDF Walk for PI 2020 National (A-Z) Boston, MA: Sunday, October 4
Read MoreDonor Spotlight: Lucinda and Robert Cathcart
Lucinda and RobertRobert Cathcart was diagnosed with a PI in 2009. Shortly after receiving his diagnosis, his mother, Lucinda, discovered IDF Walk for PI. Lucinda states, “In the beginning, when I found out about the walks, I felt it would be a great way to help shift our focus on my son’s primary immunodeficiency (PI)
Read MoreIDF Continues Fight to Convert Medicare IVIG Demo into Permanent Benefit
In 2012, in response to advocacy by the Immune Deficiency Foundation, Congress passed a law establishing a unique Medicare demonstration project that allowed enrollees with primary immunodeficiency (PI) to receive intravenous immunoglobulin therapy (IVIG) in the home. The IVIG demonstration (demo project), which was extended in 2017, aids
Read MoreIDF Launches New Web-based Resource for CGD Community
The Immune Deficiency Foundation (IDF), a patient organization supporting people affected by primary immunodeficiency (PI), announces the launch of a new website designed to assist persons with Chronic Granulomatous Disease (CGD). CGD is a PI that prevents the body’s cells from producing chemicals to fight off common germs. As a result, a person
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