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IDF 2018 National Ig Treatment Experiences and Preferences Survey Is Here!

Your Input Is Vital – Share Your Experiences with IDF

Recently, the IDF 2018 National Ig Treatment Experiences and Preferences Survey was mailed to select households. Co-developed with immunologists, the survey specifically focuses on patients’ experiences with intravenous immunoglobulin replacement therapy (IVIG) and subcutaneous immunoglobulin replacement therapy (SCIG).

Immune Deficiency Foundation Statement on the Flu Vaccine

We are fortunate there is a safe and effective vaccine to protect us from the flu. The Immune Deficiency Foundation (IDF) represents some 250,000 people in the U.S. with primary immunodeficiency diseases (PI), rare but serious conditions in which the immune system is absent or functions improperly. Our population, along with the elderly, infants, those on chemotherapy and those for whom vaccines don't work, are all at a higher risk of severe illness and even death if they get the flu.

Alabama Now Screening Newborns for Severe Combined Immunodeficiency (SCID)

Alabama has officially begun screening newborns for Severe Combined Immunodeficiency (SCID), making it the 48th state to screen for this life-threatening disorder, one of the most severe forms of primary immunodeficiency diseases (PI).

Infants affected by SCID lack T cells, the white blood cells that help resist infections due to a wide array of viruses, bacteria and fungi. Babies with SCID appear healthy at birth, but without early treatment, most often by hematopoietic stem cell transplant from a healthy donor, these infants cannot survive.

Introducing IDF’s New Podcast, Primary Immunodeficiency Q&A

Download the debut episode of the new podcast from the Immune Deficiency Foundation (IDF), Primary Immunodeficiency Q&A, now available on iTunes.

Each episode will feature a special guest, from physicians and nurses to life management experts and patients with primary immunodeficiency diseases (PI). They will provide listeners with helpful information about living with PI, a group of more than 350 rare, chronic diseases affecting more than 250,000 in the U.S.


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