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IDF Education Meetings: Bringing Together the IDF Community to Build Connections, Foster Education and Have Fun

There are many opportunities for the IDF community to come together and learn about living with primary immunodeficiency diseases (PI), one of those being IDF Education Meetings. These educational events, held in various cities around the country throughout the year, are specifically designed for individuals with PI and their families to provide invaluable information about diagnosis, treatment, management of PI and more.

IDF Started with You

The Immune Deficiency Foundation (IDF) started with volunteers. In 1980 Marcia Boyle co-founded IDF, the national nonprofit patient organization dedicated to people with primary immunodeficiency diseases (PI) after her son was diagnosed with a PI. Following his diagnosis, Marcia soon realized and was deeply concerned to find there were no educational materials and no advocacy groups for people with PI like her son John.

CLONE IDF Online Donation - CURRENT 2018


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Future Generations Depend on You

Leave a Legacy for the PI Community: IDF Legacy Society

One of the most powerful ways you can help future generations affected by primary immunodeficiency diseases (PI) is to name IDF in your will. By doing so, you become a lasting part of IDF, the national patient organization dedicated to improving the diagnosis, treatment and quality of life of people with PI.

Fighting for Co-pay Choice Legislation: Iowa Advocacy Day

Ensuring Affordable Access to Care

As a rare disease community, those living with PI may find it difficult to get the lifesaving treatment they need through affordable rates and flat fee only co-pays. IDF works on the issues of co-pay and affordability on both a Federal and State level, but often the State level is where the issue gets met head-on and why IDF leads the charge for our community in states like Iowa.


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