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Immune Deficiency Foundation (IDF) Awarded $4 Million HRSA Grant For Nationwide Screening and Education Program for Severe Combined Immunodeficiency (SCID)

August 23, 2018 (Towson, MD) – The Immune Deficiency Foundation (IDF), the national patient organization for people with primary immunodeficiency diseases (PI), recently announced they will be awarded a $4 million grant from the U.S. Health Resources and Services Administration (HRSA) to design and implement an advanced screening and education program for people with Severe Combined Immunodeficiency (SCID) in rural areas or underserved communities. The project period is 08/01/2018 - 07/31/2020.

IDF Volunteer Meghean Feidelman: Making a Difference, One Person at a Time

One of Meghean Feidelman’s first memories is a chest x-ray at three-years-old. This was the beginning of a 40-year arduous journey before the unusual cause of her symptoms would be discovered. Along the way, doctors treated her for a variety of symptoms, but none identified the underlying cause. Everything changed when she finally saw a new doctor who had just finished medical school.

Immune Deficiency Foundation (IDF) Announces 2018 Research Grant Recipients

Towson, MD – August 21, 2018 – The Immune Deficiency Foundation (IDF) recently announced it will be awarding four new grants in the second year of the IDF Research Grant Program. Established in 2015, the grants are made possible by funds set aside by the IDF Board of Trustees that are raised via IDF Walk for Primary Immunodeficiency (PI) events held each fall across the country. The program is designed to fund and seed patient-oriented research with the specific benefit of improving diagnosis, treatment, and quality of life for those living with primary immunodeficiency diseases (PI).

Immune Deficiency Foundation Guide to Immunoglobulin Replacement Therapy for People Living with Primary Immunodeficiency Diseases

This guide was developed for patients and caregivers to help increase understanding of immunoglobulin (Ig) replacement therapy. An increased understanding puts patients and caregivers in a better position to make informed decisions regarding care. Education about the therapy can also build confidence and create a level of understanding that can reduce a patient’s anxiety about a treatment that can be frightening.

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