One of Meghean Feidelman’s first memories is a chest x-ray at three-years-old. This was the beginning of a 40-year arduous journey before the unusual cause of her symptoms would be discovered. Along the way, doctors treated her for a variety of symptoms, but none identified the underlying cause. Everything changed when she finally saw a new doctor who had just finished medical school.
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Towson, MD – August 21, 2018 – The Immune Deficiency Foundation (IDF) recently announced it will be awarding four new grants in the second year of the IDF Research Grant Program. Established in 2015, the grants are made possible by funds set aside by the IDF Board of Trustees that are raised via IDF Walk for Primary Immunodeficiency (PI) events held each fall across the country. The program is designed to fund and seed patient-oriented research with the specific benefit of improving diagnosis, treatment, and quality of life for those living with primary immunodeficiency diseases (PI).
Primary immunodeficiency diseases (PI) are a group of more than 350 rare, chronic disorders in which part of the body’s immune system is missing or functions improperly. Recent history suggests that even small changes to healthcare or health insurance policies can have a negative impact on those with PI.
Immune Deficiency Foundation Guide to Immunoglobulin Replacement Therapy for People Living with Primary Immunodeficiency Diseases
This guide was developed for patients and caregivers to help increase understanding of immunoglobulin (Ig) replacement therapy. An increased understanding puts patients and caregivers in a better position to make informed decisions regarding care. Education about the therapy can also build confidence and create a level of understanding that can reduce a patient’s anxiety about a treatment that can be frightening.
It all started in 2013. Three walks in three cities across the country: Philadelphia, Los Angeles and Chicago. Members of the PI community wanted a way to create awareness about primary immunodeficiency diseases (PI), and IDF Walk for PI soon became their answer.
2013 IDF Walk for PI - Los Angeles